Tuesday, 27 October 2015
On The FXAA Board
As of this Sunday I am now on the Fragile X Association of Australia board. There is a lot of work to be done in relation to education, research, advocacy and the support of Fragile X families. I'm hoping to be able to contribute to that from the perspective of an FX carrier, daughter of a carrier with FXTAS and mother and aunt to full mutation FX children.