Tuesday, 27 October 2015

On The FXAA Board

As of this Sunday I am now on the Fragile X Association of Australia board.  There is a lot of work to be done in relation to education, research, advocacy and the support of Fragile X families.  I'm hoping to be able to contribute to that from the perspective of an FX carrier, daughter of a carrier with FXTAS and mother and aunt to full mutation FX children.

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