Saturday, 6 June 2015

Minocycline and Sertraline Trial Update

The decision to try medication came after the FX conference in 2013.  We were fortunate enough to get a one-on-one appointment with Randi Hagerman who recommended some meds for both Merryn and Connor to try.

It took quite a while to get everything in place and I was really starting to give up on it all at one point.  The appointments and testing I had to organise and get the kids to, to do the base line testing, was painful and was mostly done when I was very pregnant with Liam.

That being said it has been worthwhile in the end.  We have trialed both Minocycline (to help with the cognitive development and processing) and Sertraline (to help with anxiety).  It's been our experience that the Mino really didn't help Connor significantly and so it wasn't worth the side effects (staining the teeth and bones).  We didn't think Merryn needed to try it as she is doing so well cognitively.

The Sertraline, on the other hand, has been a success.  Both of them are very anxious little souls and often become overwhelmed, but they seem to keep it together a bit better with the Sertraline.  It's a very expensive proposition as we have to have it compounded into a liquid, but thankfully they take very small doses, so each bottle lasts about a month.

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