|Asleep on Daddy's lap.|
As for the day time, I'm really worried. He is due to start Kindy next year and at this stage there is no way I could leave him there. I've tried him recently at My Time, a program for mum's with kids with disabilities so we can have a cup of tea and chat while the kids are cared for. He's become hysterical and vomited the past two times.
Right now I'm not sure how long he'll have to sleep in with us or how we will work through this anxiety. I've left a message for a Pediatric Psychologist so perhaps she'll be able to give us some ideas as to what the next steps need to be.
|Eyes dilated at the eye appointment.|
Then in two weeks time we are finally in to the Immunology clinic. His poo still sporadically burns the skin off his body every few weeks or so forming open sores, so whatever is going on is still a problem. It's taken us 12 months to get in to see the specialist (there are only two in all of Queensland) and it was nearly 2 years. The pediatrician was adamant the referral had gone through, but thankfully I followed up and it seems the system at the Royal Children's Hospital has some flaws. I'm just lucky the registrar at the Immunology clinic took pity on me and used the date the referral was 'supposed' to arrive, not the actual date when giving us an appointment.
|Smiling for mummy.|
Finally I talked to the C&K Kindy today. We got Connor's acceptance letter this week. I enrolled him when he was still a tiny baby and way before we knew there were some real issues with his development. I have to say I nearly cried when it arrived. It felt like the last vestiges of the normal life we thought we were going to have had just been destroyed. It took me back to what my dreams were for him at that stage and how much that has completely changed in the last 18 months. So I freaked the admin out today by asking if they could support a Fragile X child in their program, that was certainly the longest pause I've heard on the other end of the phone for a while. :) She's sending it up to management and the committee and will get back to me. I'd say the answer will be...'we are very sorry but....'.
So, eyes, allergies, sleep, anxiety, speech, kindy.....yes I think that's Connor for now.