Friday, 1 July 2016

Fragile X Awareness Month - Day 1

Today is the first day of Fragile X Awareness month. If you want to find out more FX you can go to the Fragile X Association of Australia website. What I would like to share with you this month is the face of FX in our family.

Connor is a little boy with Full Mutation Fragile X. He is diagnosed with communication delays (he has very few words), autistism, sensory sensitivity, intellectual disability, anxiety and sleep issues.

But he has the capacity to be extremely affectionate and loving. He loves cuddles and since he was a baby his favourite way to go to sleep is looking into my eyes. When he was little he would back into a cuddle and wouldn't wrap his arms around anyone at all. But in recent years he has started to hold hands and reciprocate cuddles. He will even give air kisses.

He brings a great deal of joy to his family with an infectious giggle and sweet smile.

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