Thursday, 7 July 2016

Fragile X Awareness month - Day 7

If you want to find out more about FX you can go to the Fragile X Association of Australia website. I will be sharing our families story.

Connor is a little boy with Full Mutation Fragile X. He is diagnosed with communication delays (he has very few words), autistism, sensory sensitivity, intellectual disability, anxiety and sleep issues. 

His anxiety means he is very conservative in how he approaches new things. As a toddler I never had to worry about him falling down stairs or slamming his fingers in things. It also means it's hard for him to do unfamiliar activities. For example the slippery slide took years for him to master and for a long time he just sat up the top and watched others go down.

So when his school said they were going to take his class out to the Riding for Disabled facility to do horse riding I was skeptical. I should have known better. Whilst he finds it hard, Connor never lets a challenge best him. He never gives up. Here is a video of my little superstar after about ten, 45min classes.

http://fragilex.org.au

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