Saturday, 9 July 2016

Fragile X Awareness month - Day 8

If you want to find out more about FX you can go to the Fragile X Association of Australia website. I will be sharing our families story.

We were very fortunate to get our family on the news today to help get Fragile X awareness out into the mainstream media. The journalist did a great job and our pediatrician Dr Honey Heusller was wonderful.

Here's a link to the story.


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