Friday 9 March 2012

DVD Update

The DVD is done!

The Fragile X Association of Australia is putting it up on the internet with their next newsletter, so as soon as they've done that I'll put the link up.

I hope this DVD can spread the word about Fragile X and help educate more health professionals.  We have certainly been met with a lot of blank stares and both my sister and I saw a LOT of doctors before I found one who even tested for it.  Hopefully it will also help parents to know what to look for too, so they can ask for the test to be done if they are suspicious.

Connor on the cover of the DVD


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